“As rheumatologists, we are the most aware of the unmet needs in research toward finding the underlying causes and eventually the cures for rheumatic diseases,” Dr. Friedman says. “The REF is working for us and our patients to help fund cutting-edge research in an era when government sources are less able to provide that kind of support.”
Plumhoff was eager to connect with the REF.
“I like to get really involved in what’s going on, instead of just seeing a doctor and taking medications,” he says.
Soon, he began hosting a Coffee & Conversation gathering in his home for the REF. These small, informal events are designed to stimulate meaningful conversations about inflammatory diseases from the viewpoint of patients and families, while also offering insight into the research funded by the REF.
In addition, Plumhoff joined a panel of volunteers who answer questions from other patients on the REF Facebook page.
“If I could talk to someone going through what I went through,” says Plumhoff, “I’d say: ‘knowledge is power.’ Learn as much as you can about your disease. And secondly, get active.”
Plumhoff is thankful to Dr. Friedman for connecting him with the REF, since he thinks it’s important to fund rheumatology research and to develop the careers of future rheumatologists.
“With the aging population, more and more people are going to be hit by these diseases that are less well known. Rare conditions need to have their share of funding for research,” says Plumhoff. “And, if I didn’t have access to these fine doctors, I don’t think I’d be alive right now.”
Dr. Friedman feels that the more patients know about the REF, the more they will want to be involved. “The REF is committed to promoting rheumatology as a specialty by assisting in the training of young physicians and scientists to pursue this field and develop successful research careers. The patients have a huge stake in our success, and many are eager and proud to contribute to our efforts if we give them an opportunity.”
Do you know a patient who has a compelling story like Plumhoff’s? Is your patient interested in recent discoveries surrounding their disease? The REF encourages patients and their family members to learn more about what steps are being taken today to advance treatment and find cures for rheumatic diseases. Let them know they can stay connected by subscribing to our e-newsletter, liking us on Facebook, or sharing their story.