Do a Lack of Information & Social Support Affect Lupus Outcomes?

“It [lupus] attacks in different areas in different moments. Some people look at it—how is something making your head hurt and giving sores in your mouth? How is something making your body hurt? I don’t really hang out with a lot of people. They just don’t really believe it. And I don’t like them anymore.”

“Even when I’m healthy, I still need help. If you [I] try to do too much. Just because you feel good today, don’t do everything. You could feel bad all week [if you try to do too much]. I’m trying to get him [my partner] to understand that. I think that the most important thing is that, no one in my family understands it. No one in my family. They don’t ask me anything. They don’t come see me. There is no help. There is nothing.”