Video: Every Case Tells a Story| Webinar: ACR/CHEST ILD Guidelines in Practice

An official publication of the ACR and the ARP serving rheumatologists and rheumatology professionals

  • Conditions
    • Axial Spondyloarthritis
    • Gout and Crystalline Arthritis
    • Myositis
    • Osteoarthritis and Bone Disorders
    • Pain Syndromes
    • Pediatric Conditions
    • Psoriatic Arthritis
    • Rheumatoid Arthritis
    • Sjögren’s Disease
    • Systemic Lupus Erythematosus
    • Systemic Sclerosis
    • Vasculitis
    • Other Rheumatic Conditions
  • FocusRheum
    • ANCA-Associated Vasculitis
    • Axial Spondyloarthritis
    • Gout
    • Psoriatic Arthritis
    • Rheumatoid Arthritis
    • Systemic Lupus Erythematosus
  • Guidance
    • Clinical Criteria/Guidelines
    • Ethics
    • Legal Updates
    • Legislation & Advocacy
    • Meeting Reports
      • ACR Convergence
      • Other ACR meetings
      • EULAR/Other
    • Research Rheum
  • Drug Updates
    • Analgesics
    • Biologics/DMARDs
  • Practice Support
    • Billing/Coding
    • EMRs
    • Facility
    • Insurance
    • QA/QI
    • Technology
    • Workforce
  • Opinion
    • Patient Perspective
    • Profiles
    • Rheuminations
      • Video
    • Speak Out Rheum
  • Career
    • ACR ExamRheum
    • Awards
    • Career Development
  • ACR
    • ACR Home
    • ACR Convergence
    • ACR Guidelines
    • Journals
      • ACR Open Rheumatology
      • Arthritis & Rheumatology
      • Arthritis Care & Research
    • From the College
    • Events/CME
    • President’s Perspective
  • Search

GPA Patient Carries NORD Banner to Top of Mt. Everest

Carol Patton  |  Issue: December 2015  |  December 16, 2015

During that time, however, the disease was striking back. Besides losing half her sight, she was also hospitalized for transitory ischemic attacks.

“When diagnosed, I actually felt relief,” Ms. Abbott says, adding that she’s grateful the strokes didn’t kill her. “You think you’re going crazy, seeing dozens of doctors, and nobody can tell you what’s going on.”

ad goes here:advert-1
ADVERTISEMENT
SCROLL TO CONTINUE

She was prescribed CellCept and steroids to suppress her immune system and reduce inflammation, although her body couldn’t tolerate the steroids.

“The meds made me very sick,” she says, adding that she was 48 years old by then. “I couldn’t even sit in a chair… Every time I started feeling better, I took a higher dose.”

ad goes here:advert-2
ADVERTISEMENT
SCROLL TO CONTINUE

Still, Ms. Abbott is not the type to complain or seek pity, adds Kathy Koser, Ms. Abbott’s former boss who retired two years ago as associate dean of the College of Health and Human Development at California State University, Fullerton.

“The worse things happen to her, the stronger she gets,” says Ms. Koser, adding that Ms. Abbott’s favorite saying is by poet Vivian Greene: “Life isn’t about waiting for the storm to pass. It’s about learning to dance in the rain.”

Ms. Koser says Ms. Abbott is also a very private person and rarely mentions her disease to anyone, including students taking her personal health classes.

“Primarily, she teaches taking responsibility for your own health, how to live a better life, not just physically, but mentally, socially, emotionally,” says Ms. Koser. “She’s one of a kind—an unbelievable role model.”

Moving Up & Forward

Several months before her diagnosis, Ms. Abbott and her husband, Larry, also an active mountain climber, had planned on climbing Mt. Aconcagua, a mere 22,800-foot-high mountain in Argentina, in preparation for later climbing Mt. Everest. The couple had already booked their guide, climb and flight. Ms. Abbott was determined to let nothing—not even a rare disease or her doctors’ advice—stand in her way.

Ms. Abbott with her dog team at the start of the 2014 Iditarod.

Ms. Abbott with her dog team at the start of the 2014 Iditarod.

Her rheumatologists didn’t know if the disease would flare up, leaving her stranded and possibly abandoned to die at 22,000 feet. They desperately tried to persuade her not to go.

“The doctors kept saying, ‘We don’t know what will happen at high altitudes,’” she says, explaining that high elevations could seriously affect her cardiovascular system. “My doctors were really unhappy because I wasn’t going to change my schedule. It became mind over matter.”

Page: 1 2 3 4 5 6 | Single Page
Share: 

Filed under:ConditionsOther Rheumatic ConditionsProfessional TopicsProfiles Tagged with:GPAgranulomatosis with polyangiitisNational Organization of Rare DisordersNORDProfile

Related Articles
    Figure 2: Renal Biopsy

    The Classification & Diagnosis of Granulomatosis with Polyangiitis

    August 16, 2018

    Based on the classification system developed by the Chapel Hill Consensus Conference, anti-neutrophil cytoplasmic antibody (ANCA) associated vasculitis is defined as a necrotizing vasculitis involving small vessels that is associated with myeloperoxidase (MPO) ANCA or proteinase 3 (PR3) ANCA and displays minimal immune deposits. The mechanism behind the pathogenesis of ANCA-associated vasculitis is not fully…

    Case Report: GPA or IgG4-Related Disease in an 11-Year-Old Girl?

    April 7, 2023

    Granulomatosis with polyangiitis (GPA) is a type of anti-neutrophil cytoplasmic antibody (ANCA) associated small vessel vasculitis that typically affects the kidneys, lungs and sinuses.1 Due to an overlap in signs and symptoms, GPA may initially be difficult to distinguish from IgG4-related disease, another condition that can affect multiple tissues and has variable presentations. Further complicating…

    Case Report: A COVID-19 Mimic

    September 11, 2020

    A 67–year-old white woman with primary Raynaud’s phenomenon presented following a week of progressively worsening shortness of breath, dry cough and generalized malaise. An avid tennis player, she first noticed dyspnea while playing, but a few days later grew short of breath even at rest. She went to an urgent care center, where a computed…

    Figure 1. A nasal biopsy shows intimal infiltration of the small blood vessels (black arrow).

    Case Illustrates the Difficulty Diagnosing Granulomatosis with Polyangiitis

    June 21, 2018

    Granulomatosis with polyangiitis (GPA) was first described in the British Medical Journal in 1897 by Scottish otolaryngologist Peter McBride.1 GPA is a relatively rare, systemic necrotizing vasculitis that can make diagnosis challenging. The incidence has been estimated anywhere between two and 12 cases per million.2 GPA mainly affects adults between the ages of 45 and…

  • About Us
  • Meet the Editors
  • Issue Archives
  • Contribute
  • Advertise
  • Contact Us
  • Copyright © 2025 by John Wiley & Sons, Inc. All rights reserved, including rights for text and data mining and training of artificial technologies or similar technologies. ISSN 1931-3268 (print). ISSN 1931-3209 (online).
  • DEI Statement
  • Privacy Policy
  • Terms of Use
  • Cookie Preferences