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Patient Perspective

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Precision Medicine Today: Predicting Treatment Response in Patient Subgroups

Carina Stanton  |  May 15, 2020

SNOWMASS VILLAGE, COLO.—Choosing the right treatment at the right time is the brass ring all rheumatologists hope for. Precision medicine provides the ability to leverage clinical, biomarker and omics data to predict and personalize future treatment for rheumatoid arthritis (RA). “New data and new methods to analyze the data are helping us better predict patterns…

COVID-19 Reality Check: Collected Stories from Rheumatologists & Rheumatology Professionals

The Rheumatologist  |  May 5, 2020

A collection of compelling interviews conducted with rheumatologists and rheumatology professionals focusing on their experiences thus far in the COVID-19 pandemic.

Patient Sexual Orientation & Gender Identity: Do You Need to Know?—Ethics Forum

Nayimisha Balmuri, MD, Jacob Spitznagle, MD, & Karen Onel, MD  |  April 15, 2020

A 17-year-old girl presents to the pediatric rheumatology clinic for follow-up of recently diagnosed systemic lupus erythematosus (SLE) characterized by class IV lupus nephritis, photosensitive rash and antiphospholid antibody positivity. She is currently being treated with prednisone, mycophenolate mofetil, and hydroxychloroquine. She is accompanied by her mother, who has been very involved in the patient’s…

Do You Know Your Legal Obligations to Disabled Patients?

Kurt Ullman  |  April 13, 2020

The Americans with Disabilities Act (ADA) was passed in 1990 to protect the civil rights of people with disabilities. This law, and amendments passed in 2008, resulted in rules and regulations opening access to private settings serving the public, including doctors’ offices and medical facilities. The ADA includes a three-pronged definition of disability. If any…

Tips for Exploring Tough Topics with Teens with Rheumatic Disease

Susan Bernstein  |  January 17, 2020

ATLANTA—Managing teenage patients may present challenges for pediatric rheumatologists and rheumatology professionals not only because of their often complex, rare conditions, but because teenagers are, well, teenagers. Teens may experiment with sexual intercourse, alcohol use, tobacco or vaping e-cigarettes to fit in with their peers, even if these habits have serious health consequences, according to…

Tips for Engaging Your Pediatric Research Patients

Susan Bernstein  |  January 17, 2020

ATLANTA—Around 2002, when Vincent Del Gaizo’s son was just 15 months old, he was hospitalized in an intensive care unit and, weeks later, was diagnosed with systemic juvenile idiopathic arthritis (JIA). “We had the same 8 trillion questions that all parents have when their child is diagnosed with a condition you’ve never heard of: ‘Is…

What Should Providers Do to Address Polypharmacy?

Thomas R. Collins  |  January 17, 2020

ATLANTA—In a session at the 2019 ACR/ARP Annual Meeting, Susan Chrostowski, DNP, assistant clinical professor at Texas Woman’s University College of Nursing, Dallas, told the audience that she’d had a visit with a patient and asked how he was doing. “Not too good,” he said, explaining that his chest hurt. “What’s the matter with your…

Lessons from Master Clinicians: An Interview with Dr. Paul Plotz

Jason Liebowitz, MD, FACR  |  December 18, 2019

Rheumatologists who are outstanding clinicians, provide consistently exceptional care to patients and serve as role models for colleagues and trainees are in the spotlight in our Lessons from a Master Clinician series. Here, we offer insights from clinicians who have achieved a level of distinction in the field of rheumatology. Paul Plotz, MD, is scientist…

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The Bath Ankylosing Spondylitis Functional Index’s History & Patient View

Jason Liebowitz, MD, FACR  |  September 26, 2019

Sir William Osler, widely regarded as one of the greatest physicians of the 20th century, once said, “He who studies medicine without books sails an uncharted sea, but he who studies medicine without patients does not go to sea at all.”1 This sentiment is particularly true in the field of rheumatology, in which understanding the…

National Survey Highlights Rheumatology Patient Concerns, Challenges

Susan Bernstein  |  September 20, 2019

In a national survey of more than 1,500 Americans with rheumatic disease, more than half reported struggling to access affordable care and nearly two-thirds described challenges performing simple daily tasks.

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