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Search results for: lupus awareness

Rheuminations: The Humble Case Report Tells a Story

Bharat Kumar, MD, MME, FACP, FAAAAI, RhMSUS  |  April 4, 2025

I often think about medical literature as a sprawling metropolis. There are towering skyscrapers of randomized controlled trials, lofty schools of systematic reviews and meta-analyses, and verdant parks of qualitative studies. Much less assuming are the case reports, which are sort of like homesteads for the majority of people who publish and contribute to the…

Filed under:OpinionRheuminations Tagged with:case reportimage case report

Ekemini A. Ogbu, MD, MSc, FAAP, Leads the Pediatric Rheumatology Committee

Gretchen Henkel  |  February 17, 2025

The new chair of the ACR’s Pediatric Rheumatology Committee, Ekemini A. Ogbu, MD, MSc, FAAP, describes how helping children and families navigate complex care brings a sense of fulfillment, purpose and “just joy.”

Filed under:Career DevelopmentProfiles Tagged with:ACR’s Pediatric Rheumatology Special Committee

Patients’ Voices Ring Out

Thomas R. Collins  |  January 10, 2025

Research & patients reap benefits when patients with rheumatic conditions get involved in patient-facing organizations & in clinical research planning.

Filed under:ACR ConvergenceConditionsMeeting ReportsPatient PerspectivePractice SupportRheumatoid Arthritis Tagged with:ACR Convergence 2024patient perspectiveResearch

The 2024 ARP President’s & Merit Awards

Patrice Fusillo  |  November 26, 2024

ARP members honored for significant contributions to rheumatology research, education and patient care.

Filed under:ACR ConvergenceAwardsCareerMeeting Reports Tagged with:ACR Convergence 2024Association of Rheumatology Professionals (ARP)Awards

Can Cultural Humility Conquer Systemic Inequity in Pediatric Rheumatology?

Glen Rodman  |  November 26, 2024

Doctors and patient advocates urged the rheumatology community to address the drastic inadequacies in care faced by marginalized people in a session held at ACR Convergence 2024.

Filed under:ACR ConvergenceLegislation & AdvocacyMeeting ReportsPatient PerspectivePediatric ConditionsSystemic Lupus Erythematosus Tagged with:ACR Convergence 2024Equitypatient advocacyPediatric

Let’s Define Undifferentiated Connective Tissue Disease

Lucy Masto, BS, Medha Barbhaiya, MD, MPH, Caroline H. Siegel, MD, MS, Lisa R. Sammaritano, MD, & Michael D. Lockshin, MD  |  August 6, 2024

Undifferentiated connective tissue disease (UCTD) is a diagnosis given to patients who do not fulfill current classification criteria for named connective tissue diseases (CTD)—systemic lupus erythematosus (SLE), rheumatoid arthritis (RA), systemic sclerosis (SSc), or Sjögren’s disease—but who nonetheless have clinical signs and symptoms and serological evidence of autoimmune CTDs. In 1980 LeRoy et al. were…

Filed under:Clinical Criteria/GuidelinesConditionsGuidanceOpinionOther Rheumatic ConditionsSjögren’s DiseaseSystemic Lupus Erythematosus Tagged with:clinical criteriaconnective tissue diseaseDiagnostic CriteriaSjogren'sSLE Resource Centerundifferentiated connective tissue disease (UCTD)

Case Report: Diaphragm Ultrasound Reveals Shrinking Lung Syndrome

Mery Deeb, MD, Taro Minami, MD, Michael Stanchina, MD, Elias Jabbour, MD, & Jan Karczewski, MD  |  July 9, 2024

Shrinking lung syndrome (SLS) is a rare cause of dyspnea that has been most commonly described in patients with systemic lupus erythematosus (SLE), but is also found in systemic sclerosis, Sjögren’s disease and rheumatoid arthritis. Shrinking lung syndrome is characterized by a restrictive pattern on lung spirometry, despite normal lung parenchyma, and an elevated diaphragm.1…

Filed under:ConditionsSystemic Lupus Erythematosus Tagged with:case reportdyspneashrinking lung syndromeSLE Resource CenterUltrasound

‘Be Proactive & Stay Active’: Advice to Patients

Linda Childers  |  July 8, 2024

Magdalena “Maggie” Cadet, MD, a rheumatologist in New York City, remembers learning about the relationship between physical activity and bone health at a young age. She was 5 years old when she first began taking ballet, jazz and tap-dancing lessons. At 9, she became a competitive figure skater and practiced both dance and ice skating…

Filed under:ConditionsPatient Perspective Tagged with:DietExercise

Flipbooks: Patient and Family Education Tools

Aryan Gopinath & Srilatha Kothandaraman, MD  |  June 25, 2024

A school science project demonstrates that flipbooks can be a useful educational tool for patients and their families to learn about rheumatic conditions and their treatment.

Filed under:ConditionsOpinionOsteoarthritis and Bone DisordersPatient PerspectivePractice SupportSystemic Lupus Erythematosus

What Rheumatologists Need to Know About Antiphospholipid Syndrome

Yu (Ray) Zuo, MD, MS, & Jason S. Knight, MD, PhD  |  June 8, 2024

Antiphospholipid syndrome (APS) is an acquired thromboinflammatory disease that can have severe, sometimes catastrophic, effects on patients and their families. Our modern understanding of APS began to emerge in the early 1980s. At that point, it was defined as a condition characterized by thrombotic episodes and/or pregnancy complications in the presence of antiphospholipid antibodies (aPL).1…

Filed under:Clinical Criteria/GuidelinesConditionsGuidanceOther Rheumatic ConditionsSystemic Lupus Erythematosus Tagged with:Antiphospholipid Antibody Syndrome (APS)

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