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Search results for: lupus awareness

Patients’ Voices Ring Out

Thomas R. Collins  |  January 10, 2025

Research & patients reap benefits when patients with rheumatic conditions get involved in patient-facing organizations & in clinical research planning.

Filed under:ACR ConvergenceConditionsMeeting ReportsPatient PerspectivePractice ManagementRheumatoid Arthritis Tagged with:ACR Convergence 2024patient perspectiveResearch

The 2024 ARP President’s & Merit Awards

Patrice Fusillo  |  November 26, 2024

ARP members honored for significant contributions to rheumatology research, education and patient care.

Filed under:ACR ConvergenceAwardsCareerMeeting Reports Tagged with:ACR Convergence 2024Association of Rheumatology Professionals (ARP)Awards

Can Cultural Humility Conquer Systemic Inequity in Pediatric Rheumatology?

Glen Rodman  |  November 26, 2024

Doctors and patient advocates urged the rheumatology community to address the drastic inadequacies in care faced by marginalized people in a session held at ACR Convergence 2024.

Filed under:ACR ConvergenceLegislation & AdvocacyMeeting ReportsMeeting ReportsPatient PerspectivePediatric ConditionsSystemic Lupus Erythematosus Tagged with:ACR Convergence 2024Equitypatient advocacyPediatric

Let’s Define Undifferentiated Connective Tissue Disease

Lucy Masto, BS, Medha Barbhaiya, MD, MPH, Caroline H. Siegel, MD, MS, Lisa R. Sammaritano, MD, & Michael D. Lockshin, MD  |  August 6, 2024

Undifferentiated connective tissue disease (UCTD) is a diagnosis given to patients who do not fulfill current classification criteria for named connective tissue diseases (CTD)—systemic lupus erythematosus (SLE), rheumatoid arthritis (RA), systemic sclerosis (SSc), or Sjögren’s disease—but who nonetheless have clinical signs and symptoms and serological evidence of autoimmune CTDs. In 1980 LeRoy et al. were…

Filed under:ConditionsGuidanceGuidelinesOpinionOther Rheumatic ConditionsSjögren’s DiseaseSystemic Lupus Erythematosus Tagged with:clinical criteriaconnective tissue diseaseDiagnostic CriteriaSLE Resource Centerundifferentiated connective tissue disease (UCTD)

Case Report: Diaphragm Ultrasound Reveals Shrinking Lung Syndrome

Mery Deeb, MD, Taro Minami, MD, Michael Stanchina, MD, Elias Jabbour, MD, & Jan Karczewski, MD  |  July 9, 2024

Shrinking lung syndrome (SLS) is a rare cause of dyspnea that has been most commonly described in patients with systemic lupus erythematosus (SLE), but is also found in systemic sclerosis, Sjögren’s disease and rheumatoid arthritis. Shrinking lung syndrome is characterized by a restrictive pattern on lung spirometry, despite normal lung parenchyma, and an elevated diaphragm.1…

Filed under:ConditionsSystemic Lupus Erythematosus Tagged with:case reportdyspneashrinking lung syndromeSLE Resource CenterUltrasound

‘Be Proactive & Stay Active’: Advice to Patients

Linda Childers  |  July 8, 2024

Magdalena “Maggie” Cadet, MD, a rheumatologist in New York City, remembers learning about the relationship between physical activity and bone health at a young age. She was 5 years old when she first began taking ballet, jazz and tap-dancing lessons. At 9, she became a competitive figure skater and practiced both dance and ice skating…

Filed under:ConditionsPatient Perspective Tagged with:DietExercise

Flipbooks: Patient and Family Education Tools

Aryan Gopinath & Srilatha Kothandaraman, MD  |  June 25, 2024

A school science project demonstrates that flipbooks can be a useful educational tool for patients and their families to learn about rheumatic conditions and their treatment.

Filed under:ConditionsOpinionOsteoarthritis and Bone DisordersPatient PerspectivePractice SupportSystemic Lupus Erythematosus

What Rheumatologists Need to Know About Antiphospholipid Syndrome

Yu (Ray) Zuo, MD, MS, & Jason S. Knight, MD, PhD  |  June 8, 2024

Antiphospholipid syndrome (APS) is an acquired thromboinflammatory disease that can have severe, sometimes catastrophic, effects on patients and their families. Our modern understanding of APS began to emerge in the early 1980s. At that point, it was defined as a condition characterized by thrombotic episodes and/or pregnancy complications in the presence of antiphospholipid antibodies (aPL).1…

Filed under:Clinical Criteria/GuidelinesConditionsGuidanceOther Rheumatic ConditionsSystemic Lupus Erythematosus Tagged with:Antiphospholipid Antibody Syndrome (APS)

The 2023 ARP Merit Awards

Patrice Fusillo  |  January 10, 2024

SAN DIEGO—During ACR Convergence 2023 in November, the ACR and the ARP honored a group of distinguished individuals who have made significant contributions to rheumatology research, education and patient care. This month, The Rheumatologist profiles the recipients of the ARP Merit Awards and ARP Master class, recognizing outstanding contributions to the field of rheumatology. The…

Filed under:ACR ConvergenceAwardsCareerMeeting Reports Tagged with:ACR Convergence 2023Association of Rheumatology Professionals (ARP)

What Changes May the Next Decade Bring to Rheumatology?

Bharat Kumar, MD, MME, FACP, FAAAAI, RhMSUS  |  January 10, 2024

Is it 2024 already? It seems like yesterday that I stuffed all my earthly belongings into my black Volkswagen Jetta and headed from Lexington, Ky., to Iowa City, Iowa, to start my rheumatology fellowship.1 That was 10 years ago. Now, in 2024, as I go online—particularly on social media—and see the various happy, smiling faces…

Filed under:OpinionRheuminations Tagged with:Advocacyartificial intelligence

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