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Ethics Forum: Difficult Parents and Termination of Care in Pediatrics

Lawrence K. Jung, MD  |  Issue: November 2013  |  November 1, 2013

Attempts have been made to engage the family in resolving some of the conflicts, including social work support. However, the parents continue to resist recommendations and fail to meet their obligations, such as keeping their appointments.

It was therefore decided to terminate the physician–patient relationship. The family was given a list of pediatric rheumatologists in the surrounding states, as well as lists of local adult rheumatologists. The family ultimately elected to seek care with another local adult rheumatologist.

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Dr. Jung is chief of rheumatology at Children’s National Medical Center in Washington, D.C.

References

  1. An PG, Rabatin JS, Manwell LB, Linzer M, Brown RL, Schwartz MD. Burden of difficult encounters in primary care: Data from the Minimizing Error, Maximizing Outcomes Study. Arch Intern Med. 2009;169:410-414.
  2. Harris SM. Terminating the physician–patient “contract.” The Rheumatologist. 2012;6(12):45.
  3. Mathers N, Jones N, Hannay D. Heartsink patients: A study of their general practitioners. Br J Gen Pract. 1995;45:293-296.
  4. Lin EH, Katon W, Von Korff M, et al. Frustrating patients: Physician and patient perspectives among distressed high users of medical services. J Gen Intern Med. 1991;6:241-246.
  5. Hahn SR, Kroenke K, Spitzer RL, et al. The difficult patient: Prevalence, psychopathology, and functional impairment [published correction appears in J Gen Intern Med. 1996;11:191]. J Gen Intern Med. 1996;11:1-8.
  6. Graves JE. Taking care of the hateful patient. NEJM. 1978; 298:883-887.
  7. Lorenzetti, RC, Jacques CHM, Donovan C, Cottrell S and Buck J. Managing difficult encounters: Understanding physician, patient, and situational factors. Am Fam Physicians. 2013; 87:419-425.
  8. Breuner CC, Moreno MA. Approaches to the difficult patient/parent encounter. Pediatrics. 2011;127;163.
  9. Stokes T, Dixon-Woods M, Windridge KC, McKinley RK. Patient accounts of being removed from their general practioners list: A qualitative study. BMJ. 2003;326:1316-1325.
  10. Stokes T, Dixon-Woods M, McKinley RK. Breaking up is never easy: GP’s accounts of removing patients from their lists. Fam Practice. 2003;20:628-634.
  11. Nulty D. Is it ethical for a medical practice to dismiss a family based on their decision not to have their child immunized? JONAS Healthc Law Ethics Regul. 2012; 13:122-124.
  12. Wicclair M. Dismissing patients for health-based reasons. Camb Q Healthc Ethics. 2013;22:308-318.
  13. Flanagan-Klygis EA, Sharp L, Frader JE. Dismissing the family who refuses vaccines: A study of pediatrician attitudes. Arch Pediatr Adolesc Med. 2005;159:929-934.
  14. AMA Council on Ethical and Judicial Affairs. The patient-physican relationship. Code of Medical Ethics: Current Opinions. 2010-2011 ed. Chicago, IL: American Medical Association; 2010:374.
  15. Quill TE, Cassel CK. Nonabandonment: A central obligation for physicians. Ann Intern Med. 1995;122:368-374.

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Filed under:ConditionsEthicsPediatric ConditionsPractice SupportProfessional Topics Tagged with:patient carePediatricrheumatologytermination

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