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On Pandemics & Uncertainty: One Rheumatologist’s Story

Belinda Birnbaum, MD  |  April 24, 2020

Family Impact
I tried standing at the window to watch my 10-year-old daughter dribble her basketball, but after 30 seconds, I was dizzy and needed to lie down. The next time I saw her, she was at the bedroom doorway and I asked what she had for lunch. She told me it was 9 p.m. Virtual hugging from the doorway became a nightly ritual. She would smile at me with sad eyes each time and bravely turn to go.

On day 7, my son started to cough. It was a terrifying sound. He had a fever. We stared at him. We asked, “Are you feeling short of breath?” He looked at us, panicked and started to cry, answering, “Well, now I am!” He rejected a virtual hug, but accepted the ice cream and cookies the neighbors dropped off. That night, I listened to the three of us coughing. Four days later he was better.

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Worsening Illness Before Recovery
It was completely unclear when to go to the emergency department. But on day 10, I developed emesis with every coughing fit. I had lost 9 lbs. I felt more tachypneic, and I was too dehydrated to move. I waved the white flag.

From the emergency department ambulance bay, a nurse escorted me through an empty waiting room. My chest X-ray showed a likely secondary bacterial pneumonia, and I got fluids and doxycycline. I’ve never loved a nurse more than the one who stuck that IV in my arm. As a patient with a communicable disease with no effective treatment, I say that someone who leans close to me to help earns my eternal gratitude. The fluids were magical, and my husband picked me up to go home.

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The next week brought slow improvement. The cough continued, and I was overwhelmed with fatigue, but I ate and showered. I downloaded the telemedicine app, and my amazing colleagues encouraged me to heal and wait to go back to work until I felt much better.

On day 20, I was gripped by exertional substernal chest pain, and my newly acquired pulse oximeter read 88%. I didn’t want to think about my differential diagnosis. I went back to the emergency department, which looked different 10 days later: A triage tent outside was equipped with six-foot markers in the waiting line. There was now an entire COVID intubation area, with diagrams outside each room showing where each member of the intubating team should stand. When I was taken for my computed tomography (CT) scan, I was wheeled past two rooms where patients were getting intubated. I could only see eyes through all the PPE, but I could feel the dread. The sounds of ventilators, muffled voices and coughing had replaced the usual noise of the emergency department.

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Filed under:ConditionsOpinionSpeak Out Rheum Tagged with:BirnbaumCOVID-19

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