Pediatric Care, Disparity Awareness Among Rheumatology Research Foundation-Funded Studies Underway

Carina Stanton is a freelance science journalist based in Denver.

References

Pandya N, Sholevar C, Frasso R, et al. A qualitative study of factors that influence interest in a career in pediatric rheumatology [abstract: 147]. Arthritis Rheumatol. 2019 Oct;71(suppl 10).
Sadun RE, Chung RJ, Pollock MD, et al. Lost in transition: Resident and fellow training and experience caring for young adults with chronic conditions in a large U.S.’ academic medical center. Med Educ Online. 2019 Dec;24(1):1605783.
Sadun RE. (2020) Mind the gap: Improving care in pediatric-to-adult rheumatology transition through education. Rheum Dis Clin North Am. 2020 Feb;46(1):103–118.
Blanco I, Barjaktarovic N, Gonzalez C. Needs assessment of rheumatology fellowship program directors on the need for a health disparities curriculum for our fellowship programs [abstract: 1850]. Arthritis Rheumatol. 2019 Oct;71(suppl 10).

Nearly all adolescents and young adults (AYAs) with chronic pediatric rheumatic disease require transfer of care to an adult rheumatologist, yet almost half are lost from care at the time of transfer.1-3 Although sometimes framed as a discrete event, transition refers to the longitudinal process, often spanning several years, in which AYAs and their families…

Approximately 50% of young adult patients with childhood-onset rheumatic diseases become lost to follow-up within the first year of transferring to adult rheumatology care, mirroring the statistics of other subspecialties.1,2 One of the challenges cited most consistently by young adult patients and their families relates to differences between rheumatology care delivery in the pediatric and…

CHICAGO—At the 2018 ACR/ARHP Annual Meeting in October, the ACR and the ARHP honored a group of distinguished individuals who have made significant contributions to rheumatology research, education and patient care. This month, The Rheumatologist speaks with the winners of the ARHP Merit Awards about their individual contributions to advancing rheumatology. You’ll also find interviews…

Gaps in healthcare are common between the ages of 17 and 21. But simple collaborations between adult and pediatric rheumatologists can go a long way to help young adults stay engaged in their rheumatology care…

References

A Team Approach Improves the Transition from Pediatric to Adult Care

Tips for Transitioning Patients from Pediatric to Adult Rheumatology Care

The 2018 ARHP Merit Awards & ACR Distinguished Fellows

How to Engage Young Adult Patients

References

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