The Rheumatologist
COVID-19 News
  • Connect with us:
  • Facebook
  • Twitter
  • LinkedIn
  • YouTube
  • Feed
  • Home
  • Conditions
    • Rheumatoid Arthritis
    • SLE (Lupus)
    • Crystal Arthritis
      • Gout Resource Center
    • Spondyloarthritis
    • Osteoarthritis
    • Soft Tissue Pain
    • Scleroderma
    • Vasculitis
    • Systemic Inflammatory Syndromes
    • Guidelines
  • Resource Centers
    • Ankylosing Spondylitis Resource Center
    • Gout Resource Center
    • Rheumatoid Arthritis Resource Center
    • Systemic Lupus Erythematosus Resource Center
  • Drug Updates
    • Biologics & Biosimilars
    • DMARDs & Immunosuppressives
    • Topical Drugs
    • Analgesics
    • Safety
    • Pharma Co. News
  • Professional Topics
    • Ethics
    • Legal
    • Legislation & Advocacy
    • Career Development
      • Certification
      • Education & Training
    • Awards
    • Profiles
    • President’s Perspective
    • Rheuminations
  • Practice Management
    • Billing/Coding
    • Quality Assurance/Improvement
    • Workforce
    • Facility
    • Patient Perspective
    • Electronic Health Records
    • Apps
    • Information Technology
    • From the College
    • Multimedia
      • Audio
      • Video
  • Resources
    • Issue Archives
    • ACR Convergence
      • Systemic Lupus Erythematosus Resource Center
      • Rheumatoid Arthritis Resource Center
      • Gout Resource Center
      • Abstracts
      • Meeting Reports
      • ACR Convergence Home
    • American College of Rheumatology
    • ACR ExamRheum
    • Research Reviews
    • ACR Journals
      • Arthritis & Rheumatology
      • Arthritis Care & Research
      • ACR Open Rheumatology
    • Rheumatology Image Library
    • Treatment Guidelines
    • Rheumatology Research Foundation
    • Events
  • About Us
    • Mission/Vision
    • Meet the Authors
    • Meet the Editors
    • Contribute to The Rheumatologist
    • Subscription
    • Contact
  • Advertise
  • Search
You are here: Home / Articles / Social Media Campaign for Latin Lupus Sufferers

Social Media Campaign for Latin Lupus Sufferers

January 19, 2018 • By Vanessa Caceres

  • Tweet
  • Email
Print-Friendly Version / Save PDF

“Hablemos de Lupus does not address specific diagnosis or treatment recommendations,” Dr. Drenkard says. “Our responses provide general information about the topics raised and encourage participants to discuss their questions with their physicians.”

You Might Also Like
  • How the Mayo Clinic Maximizes Learning Opportunities Through Social Media
  • Common Sense Tips for Rheumatologists on Social Media
  • Social Media 101 for Rheumatologists & Health Professionals
Explore This Issue
January 2018
Also By This Author
  • Making Rheumatologists’ Voices Count: A Conversation with Blair Solow, MD, Incoming Government Affairs Committee Chair

The information users obtain through Hablemos de Lupus is meant to complement what they get from their doctors. It doesn’t replace in-person meetings with fellow patients or doctor visits.

ad goes here:advert-1
ADVERTISEMENT
SCROLL TO CONTINUE

A multidisciplinary team of lupus experts and rheumatologists, lupus education groups, patients and caregivers work with the initiative, in addition to a social media specialist, a creative producer and a webpage specialist. The rheumatologists are members of the Latin American Group for the Study of Lupus (GLADEL), an organization of nearly 90 rheumatologists from 36 centers across nine Latin American countries.

Hablemos also posts monthly live videos featuring a lupus expert. One recent live video discussed lupus and the kidneys. Led by an Argentinean rheumatologist, that video reached a peak of roughly 500 live views. “After 48 hours, there were 21,000 video views, over 4,000 reactions, 560 comments and nearly 700 shares,” Dr. Drenkard says.

ad goes here:advert-2
ADVERTISEMENT
SCROLL TO CONTINUE

More Numbers

User numbers reveal the need for Hablemos de Lupus. After launching in early May 2017, Hablemos has amassed more than 50,000 Facebook followers, Dr. Drenkard says. People follow from every Latin American country, but most live in Mexico, Peru and Argentina. The page has also drawn followers from the U.S., Europe and Asia.

The initiative’s first YouTube video, “What Is Lupus?” (see below), recorded 3.3 million views in its first week and reached more than 14 million people within a month. “It’s a very clear sign this is something people want more information about,” Ms. Eberhardt says.

The average Facebook reader rating for Hablemos is currently 4.8 stars out of 5, compiled from roughly 300 reviews.

ad goes here:advert-3
ADVERTISEMENT
SCROLL TO CONTINUE

“Hablemos de Lupus is a low-cost, innovative model of health education and patient empowerment proven to be effective in reaching … a huge audience in a short time, which would be unrealistic through in-person meetings,” Dr. Drenkard says.

The Users

A diverse group of users across Latin America—from patients to their family members—connect and share their stories via Hablemos de Lupus. One example: Glenda Chávez of San Salvador, El Salvador. Ms. Chávez was diagnosed with lupus 10 years ago and has organized a group of roughly 70 people with lupus in her country around a Facebook page called Lupus El Salvador. Hablemos de Lupus and Ms. Chávez’ group help provide support and information in a country with very few rheuma­tologists and few resources to make lupus more understandable, Ms. Chávez says.

Pages: 1 2 3 4 | Single Page

Filed Under: Conditions, SLE (Lupus), Technology Tagged With: Lupus, Social Media, TechnologyIssue: January 2018

You Might Also Like:
  • How the Mayo Clinic Maximizes Learning Opportunities Through Social Media
  • Common Sense Tips for Rheumatologists on Social Media
  • Social Media 101 for Rheumatologists & Health Professionals
  • The Role of Social Media in a Rheumatology Practice

ACR Convergence

Don’t miss rheumatology’s premier scientific meeting for anyone involved in research or the delivery of rheumatologic care or services.

Visit the ACR Convergence site »

Rheumatology Research Foundation

The Foundation is the largest private funding source for rheumatology research and training in the U.S.

Learn more »

American College of Rheumatology

Visit the official website for the American College of Rheumatology.

Visit the ACR »

The Rheumatologist newsmagazine reports on issues and trends in the management and treatment of rheumatic diseases. The Rheumatologist reaches 11,500 rheumatologists, internists, orthopedic surgeons, nurse practitioners, physician assistants, nurses, and other healthcare professionals who practice, research, or teach in the field of rheumatology.

About Us / Contact Us / Advertise / Privacy Policy / Terms of Use

  • Connect with us:
  • Facebook
  • Twitter
  • LinkedIn
  • YouTube
  • Feed

Copyright © 2006–2021 American College of Rheumatology. All rights reserved.

ISSN 1931-3268 (print)
ISSN 1931-3209 (online)

loading Cancel
Post was not sent - check your email addresses!
Email check failed, please try again
Sorry, your blog cannot share posts by email.
This site uses cookies: Find out more.