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ACR, Arthritis Foundation Host Congressional Briefing to Champion Rheumatology Research

From the College  |  May 17, 2025

The ACR and the Arthritis Foundation co-hosted a Congressional briefing to raise awareness on Capitol Hill about the realities of arthritis. Held in the Rayburn House Office Building on May 6, the event brought together patients, physicians and advocates to challenge misconceptions and advocate for sustained investment in rheumatology research.

A person stands at a lecturn in front of rows of seated people.

ACR President Carol Langford emphasized the value of federally funded research.

The briefing opened with remarks from ACR President Carol Langford, MD, MHS, who highlighted the widespread impact of arthritis and the importance of public education. “Too often, arthritis is dismissed as an inevitable part of aging,” Dr. Langford said. “But this disease affects people of all ages—including 300,000 children—and it is the leading cause of disability in the United States. We must correct these misconceptions and ensure that research funding reflects the true burden of this disease.”

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Dr. Langford also emphasized the economic and societal value of research supported by the National Institutes of Health (NIH), noting that such funding not only drives medical breakthroughs but also stimulates local economies and job creation. Her remarks echoed the message of more than 100 ACR advocates, who took to the Hill to advocate for protecting research funding as part of the ACR’s annual Advocates for Arthritis meeting. 

A room full of seated people.

Arthritis Foundation President and CEO Steve Taylor delivered remarks at the May 6 event.

Following Dr. Langford’s remarks, Steve Taylor, president and CEO of the Arthritis Foundation, called attention to the foundation’s transformative work with the Centers for Disease Control & Prevention. The event featured powerful remarks from a patient with juvenile idiopathic arthritis and a panel of arthritis patients who shared personal stories about navigating arthritis, underscoring the need for continued innovation and access to specialized care.

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Following these patient stories, a panel of leading rheumatologists discussed the real-world impact of federally funded research. Liana Fraenkel, MD, MPH, president of the Rheumatology Research Foundation, addressed the uncertainty surrounding NIH funding and its ripple effects on the research community. Anne Bass, MD, a rheumatologist at Weill Cornell Medicine, New York, spoke on the importance of preserving indirect cost protections for biomedical research, and Colin Edgerton, MD, FACP, RhMSUS, a former Army rheumatologist, emphasized the unique needs of service members with arthritis and the value of research funded by the Department of Defense.

As federal research funding faces renewed scrutiny, the rheumatology community must continue to lead in educating policymakers about the burden of rheumatic disease and the value of sustained investment in research. Contact your lawmakers today and urge them to protect funding for biomedical research and fund dedicated arthritis research at the Department of Defense.

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Filed under:Legislation & AdvocacyPatient Perspective Tagged with:ACR advocacyarthritis research

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