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You are here: Home / Search for "lupus awareness"

Search results for: lupus awareness

The Pop Star Effect & Lupus: Celebrity Cred May Help Raise Awareness of Rheumatic Disease

December 15, 2017 • By Richard Quinn

This year, Selena Gomez underwent a kidney transplant as a result of damage from living with lupus. But how can this celebrity story aid rheumatologists? Many see it as an opportunity to raise awareness or create a dialogue with primary care physicians. But for lupus patients, it can be a reminder for them to take control of their own wellbeing, according to rheumatologist Susan Manzi, MD, MPH…... [Read More]

Filed Under: Conditions, SLE (Lupus) Tagged With: Awareness, kidney transplant, Lupus, patient communication, Selena Gomez, systemic lupus erythematosus (SLE)

The ACR’s Collaborative Initiatives Promote Awareness of Lupus, Rheumatic Diseases

July 11, 2016 • By Joan M. Von Feldt, MD, MSEd, FACR, FACP

When I began my tenure as ACR president this past November, I posited that it “takes a village” to grow and succeed in rheumatology’s rapidly changing environment. The ACR village includes volunteers who represent a diverse leadership pipeline reflecting the demographics of our younger members. It also includes the international rheumatology community that accounts for… [Read More]

Filed Under: Conditions, President's Perspective, SLE (Lupus) Tagged With: ACR/ARHP, Advocacy, American College of Rheumatology, collaboration, Lupus, Rheumatic Disease, SLE, The Lupus Initiative

Simple Tasks Seeks Compelling Patient Stories for Awareness Campaign

October 7, 2022 • By From the College

Patient stories are a powerful way to highlight ways that healthcare policies affect the everyday lives of people with rheumatic diseases.... [Read More]

Filed Under: Legislation & Advocacy, Patient Perspective Tagged With: Advocacy, patient perspective, Simple Tasks

CDC-Funded RISE Project Aims to Improve Systemic Lupus Erythematosus Patient Outcomes

February 19, 2021 • By Allison Plitman

In September 2020, the ACR received a $7 million grant for a four-pronged SLE approach that seeks to address gaps and inequities in SLE through physician education, medical school outreach, pediatric support and disease management.... [Read More]

Filed Under: American College of Rheumatology, Electronic Health Records, SLE (Lupus) Tagged With: RISE registry, SLE Resource Center, systemic lupus erythematosus (SLE)

Study Finds Renal Arteriosclerosis Is Common in Lupus Nephritis Patients

February 16, 2021 • By Mary Beth Nierengarten

Renal arteriosclerosis is common in lupus patients with nephritis and occurs two decades earlier than it does in people without lupus nephritis (LN), report investigators in a study that examined the prevalence of renal arteriosclerosis in LN patients compared with healthy controls.1  The finding suggests that renal arteriosclerosis could be used as a biomarker for… [Read More]

Filed Under: Conditions, Research Reviews, SLE (Lupus) Tagged With: Cardiovascular disease, Lupus nephritis, renal arterialsclerosis, SLE Resource Center

Pediatric Care, Disparity Awareness Among Rheumatology Research Foundation-Funded Studies Underway

November 10, 2020 • By Carina Stanton

Investigators are tackling rheumatology practice challenges, assessing what drives career choices in pediatric rheumatology, improving fellowship training and more—all with the support of the Rheumatology Research Foundation.... [Read More]

Filed Under: Conditions Tagged With: disparity, fellowship, Pediatric, Rheumatology Research Foundation, Transitions

5 Challenges in the Treatment & Diagnosis of Lupus

February 13, 2020 • By Kelly Tyrrell

A recent study published in Lupus Science & Medicine lays out five of the top barriers impeding progress in lupus diagnosis and treatment.1 The Addressing Lupus Pillars for Health Advancement project (ALPHA), led by the Lupus Foundation of America (LFA), researchers at the Tufts School of Medicine Center for the Study of Drug Development (Tufts… [Read More]

Filed Under: Conditions, Research Reviews, SLE (Lupus) Tagged With: Access to care, adherence, Biomarkers, clinical trials, heterogeneity, SLE Resource Center, Socioeconomic Impact

A Public Health Approach to Arthritis: Experts Continue to Raise Awareness of Arthritis Burden

February 12, 2020 • By Thomas R. Collins

Public health agencies have been raising the profile of arthritis…... [Read More]

Filed Under: Professional Topics Tagged With: Arthritis, burden, CDC, public health

Do a Lack of Information & Social Support Affect Lupus Outcomes?

September 17, 2019 • By Renée Bacher

Patients with systemic lupus erythematosus (SLE) need better appraisal and more informational and social support, according to a new study on health-related quality of life in these patients.1 The phenomenological study, comprising qualitative interviews with patients in the Lupus Clinic at the Washington University School of Medicine, St. Louis, Mo., also found a need for… [Read More]

Filed Under: Conditions, Patient Perspective, Research Reviews, SLE (Lupus) Tagged With: physician-patient communication, psycho-social, Social Networking

New Study Examines Cerebrovascular Events in Lupus Patients

May 17, 2019 • By Linda Childers

Stroke and transient ischemia are the most common cerebrovascular events in lupus patients, and a new study has found most of these occurrences can be attributed to lupus itself rather than other causes. The study, published in the October 2018 issue of Arthritis Care & Research, looked at the frequency, association and outcomes of cerebrovascular… [Read More]

Filed Under: Conditions, SLE (Lupus) Tagged With: hemorrhagic stroke, ischemic stroke, stroke

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