Although many barriers to implementing such a model may exist, Dr. Hackett hopes rheumatologists may look for ways to overcome such barriers to improve services and care for patients. Based on study findings, this type of clinic is clearly one that patients would value.
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3. Understand Patient Needs from Different Perspectives
“I was surprised at the level of agreement between stakeholder groups, which was generally high overall. However, it was also interesting to see where there were differences of opinion,” Dr. Hackett says.
Example: The healthcare professionals surveyed perceived that patients would be able to participate better in their daily activities if their mood were better and they had less stress and worry. However, patients and family members prioritized being able to exercise and having a good diet over mood.
“As healthcare professionals, we may think we know what our patients want and need, but our perspective may be wrong,” she says. “I think this research highlights the importance of really listening to our patients to gain an understanding of their individual priorities. Then we can work in partnership with them to support them to achieve their personal goals.”
Carina Stanton is a freelance science journalist in Denver.
- Hackett KL, Deane KHO, Newton JL, et al. Mixed‐methods study identifying key intervention targets to improve participation in daily living activities in primary Sjögren’s syndrome patients. Arthritis Care Res. 2018; 70:7:1064–1073.