To get involved in data sharing to support and advance research, check out the ACR’s RISE registry.
Allison Plitman, MPA, is the communications specialist for the ACR’s RISE Registry.
Allison Plitman | Issue: January 2021 |
To get involved in data sharing to support and advance research, check out the ACR’s RISE registry.
Allison Plitman, MPA, is the communications specialist for the ACR’s RISE Registry.
The ACR’s RISE registry offers answers on real-world experience to researchers.
The advent of quality-based healthcare, such as the Medicare Access and CHIP Reauthorization Act of 2015 (MACRA), requires rheumatology professionals to demonstrate their practice is based on interventions supported by the best available evidence and that their practice, in turn, provides quality care. These requirements have increased the need for methods to measure and quantify…
Practice-based evidence, like that in the RISE registry, can be used to describe trends in patient care, look at comparative effectiveness of interventions and much more.
New methods of gene sequencing have resulted in improved identification of mutations in patients and increased availability of genetic testing in rare diseases. Despite these exciting advances, a majority of patients lack identifiable mutations and the underlying disease etiology remains an enigma. Somatic mosaicism (SM) may be an explanation for some of these clinically challenging…