To build on these efforts, COIN is now developing two plans for use by school nurses. The first is designed to support students with lupus in becoming independent and able to self-manage through the transition from pediatric to adult care. The other is a school nurse lupus care plan. Rheumatologists, pediatricians and rheumatology fellows at UT Southwestern and St. Louis University are working together to create these plans. Once completed, the ACR and its collaborators will pilot them in Georgia and Florida, and then disseminate them nationwide.
The second COIN project is focused on students, the Playbook Project. It is intended to raise awareness among college-age African-American women, a group disproportionately affected by lupus and in need of education about lupus. The activities included in the Playbook Project have already been implemented on nine college campuses.