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Tips for Transitioning Patients from Pediatric to Adult Rheumatology Care

Sarah D. Bayefsky, MD, Kimberly DeQuattro, MD, & Rebecca E. Sadun, MD, PhD  |  Issue: October 2021  |  

References

  1. Jensen PT, Paul GV, LaCount S, et al. Assessment of transition readiness in adolescents and young adults with chronic health conditions. Pediatr Rheumatol Online J. 2017 Sep 9;15(1):70.
  2. Hart LC, Pollock M, Brown A, et al. Where did they go? Tracking young adult follow-up during the transition from pediatric to adult-oriented care. Clin Pediatr (Phila). 2019 Oct;58(11–12):1277–1283. Epub 2019 Jun 10.
  3. Jiang I, Major G, Singh-Grewal D, et al. Patient and parent perspectives on transition from paediatric to adult healthcare in rheumatic diseases: An interview study. BMJ Open. 2021 Jan 4;11(1):e039670.
  4. Sadun RE. Mind the gap: Improving care in pediatric-to-adult rheumatology transition through education. Rheum Dis Clin North Am. 2020 Feb;46(1):103–118.
  5. Sadun RE, Schanberg LE. Transition and transfer of the patient with paediatric-onset lupus: A practical approach for paediatric and adult rheumatology practices. Lupus Sci Med. 2018 Aug 13;5(1):e000282.
  6. White P, Schmidt A, Shorr J, et al. Six Core Elements of Health Care Transition 3.0. Washington, D.C.: Got Transition, The National Alliance to Advance Adolescent Health. 2020 Jul; pp. 9–19.
  7. Ringold S, Cron RQ. The temporomandibular joint in juvenile idiopathic arthritis: Frequently used and frequently arthritic. Pediatr Rheumatol Online J. 2009 May 29;7:11.
  8. Tambralli A, Beukelman T, Weiser P, et al. High doses of infliximab in the management of juvenile idiopathic arthritis. J Rheumatol. 2013 Oct;40(10):1749–1755. Epub 2013 Aug 15.
  9. de Vries HS, van Oijen MG, Driessen RJ, et al. Appropriate infliximab infusion dosage and monitoring: Results of a panel meeting of rheumatologists, dermatologists and gastroenterologists. Br J Clin Pharmacol. 2011 Jan;71(1):7–19.
  10. Ruperto N, Murray KJ, Gerloni V, et al. A randomized trial of parenteral methotrexate comparing an intermediate dose with a higher dose in children with juvenile idiopathic arthritis who failed to respond to standard doses of methotrexate. Arthritis Rheum. 2004 Jul;50(7):2191–2201.
  11. Amaral B, Murphy G, Ioannou Y, Isenberg DA. A comparison of the outcome of adolescent and adult-onset systemic lupus erythematosus. Rheumatology (Oxford). 2014 Jun;53(6):1130–1135. Epub 2014 Feb 6.
  12. Silva JR, Brito I. Systemic juvenile idiopathic arthritis versus adult-onset Still’s disease: The pertinence of changing the current classification criteria. Acta Reumatol Port. 2020 Apr–Jun;45(2):150–151.
  13. Johnson SB, Blum RW, Giedd JN. Adolescent maturity and the brain: The promise and pitfalls of neuroscience research in adolescent health policy. J Adolesc Health. 2009 Sep;45(3):216–221.

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