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Search results for: pediatric rheumatology

ACR Releases Clinical Guidance for Patients with Multisystem Inflammatory Syndrome in Children

Gretchen Henkel  |  July 8, 2020

The recommendations for MIS-C focus on general guidance, diagnostic evaluation and therapy options, as well as comparing and contrasting the features of MIS-C and Kawasaki disease.

Filed under:ConditionsPediatric Conditions Tagged with:COVID-19Jay MehtaLauren HendersonMultisystem Inflammatory Syndrome in Children (MIS-C)Pediatric Rheumatology

Case Report: Which Vasculitis Is It?

Mary Buckley, MD, & Jeffrey Dvergsten, MD  |  June 15, 2020

A 13-year-old, adopted girl of unknown ancestry with social anxiety, selective mutism and Takayasu arteritis presented for evaluation of severe, painful, gingival hyperplasia, which limited her oral intake and resulted in weight loss. The young patient was diagnosed with Takayasu arteritis at age 8, when she presented with a persistently elevated erythrocyte sedimentation rate (ESR),…

Filed under:ConditionsVasculitis Tagged with:Behçet’s diseasecase reportTakayasu arteritis (TAK)

Patient Sexual Orientation & Gender Identity: Do You Need to Know?—Ethics Forum

Nayimisha Balmuri, MD, Jacob Spitznagle, MD, & Karen Onel, MD  |  April 15, 2020

A 17-year-old girl presents to the pediatric rheumatology clinic for follow-up of recently diagnosed systemic lupus erythematosus (SLE) characterized by class IV lupus nephritis, photosensitive rash and antiphospholid antibody positivity. She is currently being treated with prednisone, mycophenolate mofetil, and hydroxychloroquine. She is accompanied by her mother, who has been very involved in the patient’s…

Filed under:EthicsPatient Perspective Tagged with:Ethics ForumLGBTQPediatric Rheumatologysexuality

New Study Sheds Light on Deficiency of Adenosine Deaminase 2 (DADA2)

Mary Beth Nierengarten  |  April 15, 2020

Since it was first described, the spectrum of disease caused by deficiency of adenosine deaminase 2 (DADA2) has been broadening. Features described include systemic vascular and inflammatory features and recurrent stroke, which overlap with childhood-onset poly­arteritis nodosa (PAN). Previous data show that DADA2 has extensive genotypic and phenotypic variation.1 Results from a recently published study…

Filed under:ConditionsVasculitis Tagged with:deficiency of adenosine deaminase 2 (DADA2)

JIA & the Temporomandibular Joint: Diagnostic Challenges & Treatment Options

Marinka Twilt, MD, MSCE, PhD, & Peter B. Stoustrup DDS, PhD  |  April 10, 2020

Juvenile idiopathic arthritis (JIA) can affect all joints, including the temporomandibular joints (TMJs). For a long time, the TMJ was a “forgotten” joint in pediatric rheumatology, although Sir Frederick Still did comment on a small mandible in his first case series on juvenile arthritis in 1897. In recent years, more attention has been given to…

Filed under:Conditions Tagged with:juvenile idiopathic arthritis (JIA)Pediatric RheumPediatric Rheumatology

New Options Emerge for Treating Macrophage Activation Syndrome

Mike Fillon  |  March 19, 2020

ATLANTA—Macrophage activation syndrome (MAS), a subset of hemophagocytic lymphohistiocytosis (HLH) disease, can be a fatal result of rheumatic disease. But there’s good news: New therapeutic options for refractory MAS targeting individual cytokines are emerging. At the 2019 ACR/ARP Annual Meeting, possible therapeutic options were presented during a pediatric-focused clinical and translational research track, Therapeutic Approaches…

Filed under:Conditions Tagged with:2019 ACR/ARP Annual MeetingIL-1macrophage activation syndrome

Don’t Forget the Host: COVID-19 Cytokine Storm

Randy Q. Cron, MD, PhD, & W. Winn Chatham, MD  |  March 16, 2020

The new coronavirus outbreak, COVID-19, reminds us how we have struggled to keep ahead of mutating pathogens through the ages.

Filed under:Conditions Tagged with:COVID-19

Tips for Exploring Tough Topics with Teens with Rheumatic Disease

Susan Bernstein  |  January 17, 2020

ATLANTA—Managing teenage patients may present challenges for pediatric rheumatologists and rheumatology professionals not only because of their often complex, rare conditions, but because teenagers are, well, teenagers. Teens may experiment with sexual intercourse, alcohol use, tobacco or vaping e-cigarettes to fit in with their peers, even if these habits have serious health consequences, according to…

Filed under:Patient PerspectivePresident's Perspective Tagged with:2019 ACR/ARP Annual MeetingLGBTQPediatric Rheumatology

New ACR/ARP Committee Members Are Ready to Work

Kimberly J. Retzlaff  |  January 16, 2020

Volunteering is a great way to give back and can be truly meaningful. Myriad worthwhile causes exist, so it can be hard to choose among them, but donating time to ACR and ARP committees helps promote rheumatology practice and brings awareness to rheumatic diseases. The College relies on volunteers to help achieve strategic priorities, promote…

Filed under:Professional Topics Tagged with:Association of Rheumatology Professionals (ARP)LeadershipVolunteering

ACR Advocacy: 2019 Year in Review

Blair Solow, MD  |  January 5, 2020

As a new year begins, Government Affairs Committee chair Blair Solow, MD, takes stock of ACR advocacy wins in 2019 and issues to watch in 2020.

Filed under:Legislation & Advocacy Tagged with:Blair SolowGovernment Affairs Committee (GAC)legislation and advocacy

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