Many resources are available for patients looking for additional information. Dr. McVey suggests referring patients to governmental websites, such as Medline Plus and National Institute of Arthritis and Musculoskeletal and Skin Diseases, or national and local chapters of disease-specific organizations, such as the American College of Rheumatology or the Arthritis Foundation. “I always caution patients not to read online stories from other patients, which may cause them anxiety and provide misinformation,” she says.
“It is best to mention that you have resources to offer, but try not to overwhelm the patient while conveying the initial diagnosis,” Dr. Minardo concludes. “If the patient seems interested, then feel free to share them. If the patient had a particularly bad reaction or remained very emotional throughout the visit, it is a good idea to refer him or her to a psychologist or social worker on site. Otherwise, it is best to focus on this at a follow-up visit.”
Karen Appold is a medical writer in Pennsylvania.
A 6-Step Plan
Daniel Kim, MD, rheumatologist, The Ohio State University Wexner Medical Center, Columbus, Ohio, suggests following these six steps when planning to deliver difficult news to a patient.
- Plan where the meeting will take place, what to say and who will be present for the meeting.
- Find out what the patient knows.
- Find out how much the patient wants to know.
- Share the information.
- Respond to the patient’s feelings.
- Make a plan and follow up.
