At the Hospital for Special Surgery (HSS), New York, rheumatologists and social workers have found that an interdisciplinary approach to care for systemic lupus erythematosus (SLE) patients improves the overall patient experience. “Our goal is to help patients navigate the complex healthcare system,” says Jillian Rose, LCSW, MPH, assistant director, Community Engagement, Diversity & Research….
April is Sjögren’s Awareness Month, a time for rheumatologists to help educate the public and themselves about Sjögren’s syndrome and its diagnosis. With newly published clinical practice guidelines, Nancy Carteron, MD, encourages rheumatologists to be first responders for this patient population…
Until now, rheumatic diseases have never had a unified national health observance to bring stakeholders—physicians, patients, patient advocacy groups, government, pharmaceutical companies and the public—together. This September, the ACR and Simple Tasks are launching Rheumatic Disease Awareness Month to improve the public’s understanding and awareness of the symptoms, risk factors, treatment options, personal and economic impact, and lifestyle and healthcare challenges associated with rheumatic disease…
We report a case of a 27-year-old woman who was initially diagnosed with systemic lupus erythematosus (SLE), had features of scleroderma and was subsequently found to have lymph node biopsy consistent with multicentric Castleman disease (MCD). She also had serologic evidence of acute Epstein-Barr virus (EBV) infection (vs. reactivation of EBV). The occurrence of MCD…
The Lupus Initiative (TLI) of the American College of Rheumatology (ACR) continues its work to reduce the health disparities for people with lupus through multiple, national-level, grant-funded projects, targeting primary care physicians with lupus education to increase appropriate rheumatology referrals and—when necessary, appropriate and effective—distance-managed care. Since 2009, the ACR has received funding through the…
The Centers for Disease Control and Prevention (CDC) has awarded the American College of Rheumatology’s (ACR) The Lupus Initiative (TLI) with a five-year grant to support the development of a national, grassroots program targeting primary care providers, persons with undiagnosed Lupus and rheumatology health care providers. The program will have three components: Immediate dissemination of…
The Lupus Initiative (TLI) has been an emergent creation inside the American College of Rheumatology (ACR) for the past six years. In 2009, the Office of Minority Health and Office of Women’s Health (now called the Office of Health Disparities) solicited an application from the ACR to develop resources for educating non-rheumatologists, both in training…
Online progam boasts continuing medical education, learning curriculum for healthcare professionals and students, as well as a smartphone app to help patients track their symptoms
CME series “Conscious and Unconscious Biases in Healthcare: Focus on Lupus” has curriculum and tools to reduce healthcare disparities
It’s time for a new strategy